The illness is classified as a neurological illness and more people are better informed than they were 10 years ago, but it is still not uncommon to experience a lack of understanding and support when explaining that the person you care for has CFS/ME.
Many people don’t know anything about the illness and this is often where assumptions come from. Remember not to doubt yourself or the person you care for just because other people are ill-informed about the condition. The better your own understanding of CFS/ME, the more you will be able to dispel the misconceptions you may find in other people. As a result of other’s lack of empathy, you may feel worried, upset, confused, overwhelmed, scared, disbelieving or even angry.